第一届多发性硬化及视神经脊髓炎患友会

2014-09-22 小闪 医学论坛网

2014年9月21日,为了普及多发性硬化及视神经脊髓炎的基本知识、介绍最新的研究进展,指导患者朋友进行恰当的治疗、康复和护理,中日友好医院神经内科专程组织了第一届多发性硬化及视神经脊髓炎患友会。 多发性硬化(multiple sclerosis,MS)和视神经脊髓炎(neuromyelitis optica,NMO)都属于中枢神经系统免疫相关性脱髓鞘性疾病。由于这两种疾病临床特点相似,都

2014年9月21日,为了普及多发性硬化视神经脊髓炎的基本知识、介绍最新的研究进展,指导患者朋友进行恰当的治疗、康复和护理,中日友好医院神经内科专程组织了第一届多发性硬化及视神经脊髓炎患友会

多发性硬化(multiple sclerosis,MS)和视神经脊髓炎(neuromyelitis optica,NMO)都属于中枢神经系统免疫相关性脱髓鞘性疾病。由于这两种疾病临床特点相似,都可以有视神经炎和脊髓炎等表现,10年前,它们在大多数情况下还被统称为一种疾病。

最新临床研究表明,这是两种相似但不同的疾病。它们最优治疗方案不同:MS主要采用β-干扰素、glatiramer acetate等药物治疗;而NMO主要采用血浆置换及长期激素和硫唑嘌呤等免疫抑制剂等方法治疗。

目前,这两种疾病在国内外均属于少见和疑难病,在诊断和鉴别上存在较大难度,容易错诊和误诊。由于基层神经内科大夫对多发性硬化和视神经脊髓炎两种疾病普遍缺乏全面认识,很多医院也不具备确诊这两种疾病的设备条件,导致全国各地仍有很多患者求医无门,无法得到及时、有效的治疗,并且在辗转求医的过程中一再延误病情,不能很好控制复发,并导致许多后遗症和并发症,给患者造成巨大的心理压力,更给他们的家庭造成沉重的经济负担。因此,准确鉴别这两种疾病十分重要。

由曾在美国梅奥医学中心深入研究多发性硬化和视神经脊髓炎的专家矫毓娟博士详细介绍这两种疾病的鉴别诊断要点,同时邀请医院眼科、康复医学科和放射诊断科知名专家讲座,为MS及NMO患友和家属全面普及科学的防治和康复知识。会议上,患者相互交流,并与大家分享跟疾病和谐共处的成功经验。

中日友好医院自2006年设立了神经免疫疾病门诊,专门重点诊治多发性硬化、视神经脊髓炎、中枢神经系统脱髓鞘疾病、重症肌无力、吉兰-巴雷综合征、慢性炎性脱髓鞘性多神经根神经病、危重病性多发性神经病、血管炎、炎性假瘤、同心圆硬化等多种疑难疾病。至今中日友好医院已经接诊了大量的视神经脊髓炎和多发性硬化病例。该门诊由具有多年神经免疫病临床诊治和科研经验的矫毓娟博士带头,联合眼科金明教授、中医科郭改会教授、神经内科焦劲松教授、张伟赫博士等人组成神经免疫病专病诊治组,固定门诊时间、进行全套临床病情评估、并为患者定期复诊、长期随访。

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    2015-03-22 gj0740
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    2015-05-01 jml2009
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    2014-10-10 zyzyyan

    很有用,好好学习

    0

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