Int J Pediatr Otorhinolaryngol:婴儿单侧听力损失确诊后的决策

2021-07-12 AlexYang MedSci原创

当婴儿通过新生儿听力筛查确定为患有听力损失时,父母需要做出可能会对孩子产生终身影响的决定。2001年澳大利亚开始普及新生儿听力筛查时,除了定期监测孩子的听力外,父母几乎没有其他选择来管理婴儿的单侧听力

当婴儿通过新生儿听力筛查确定为患有听力损失时,父母需要做出可能会对孩子产生终身影响的决定。2001年澳大利亚开始普及新生儿听力筛查时,除了定期监测孩子的听力外,父母几乎没有其他选择来管理婴儿的单侧听力损失(UHL)。近几年来,这种情况有所改变。患有单侧听力损失的儿童与患有双侧听力损失的儿童有了相同的选择。

目前,患有单侧听力损失(UHL)婴儿的父母在了解婴儿是否需要额外的支持之前,就已经根据有限的证据决定了如何管理他们的听力损失。近期,有研究人员调查了父母和临床医生在新生儿听力筛查后对UHL管理的决策过程

研究人员招募了两个方便的样本。15名4岁以下永久性UHL患儿的父母和14位临床医生。通过半结构式访谈的主题分析,从家长和临床医生的角度深入了解了决策的复杂性。结果发现,决策过程有三个主要的主题:决策的动机、有限的证据造成的不确定性,以及现有证据建立的确定性。家长和临床医生的不同经验和意见突出了在有争议的意见和没有明确的最佳管理方案时决策的复杂性。

访谈的指导例子

综上所述,父母对他们孩子的UHL管理所做的选择可能会对他们的孩子产生终身的影响。在父母能够有效地评估其选择的短期和长期后果,以及在长期内是否利大于弊之前,仍旧需要回答许多问题。这种不确定性对专业人员和家长来说是一种挑战,并有可能出现认知偏差,影响临床和家长的决策

原始出处:

Ann Porter , Nicola Sheeran , Michelle Hood et al. Decision-making following identification of an infant's unilateral hearing loss: Parent and professional perspectives. Int J Pediatr Otorhinolaryngol. Jun 2021

 

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    2022-06-21 feather89
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    2021-07-14 ysjykql
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    2021-07-12 milkshark

    这篇不错

    0

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