2021 国际临床共识:神经元蜡样质脂褐质沉积症1型(CLN1)的管理

2021-07-20 国外神经外科相关专家小组(统称) Pediatric Neurology

神经元蜡样质脂褐质沉积症1型(CLN1)是一种遗传性神经元变性疾病。多为常染色体隐性遗传。本文通过评估当前证据,针对CLN1的管理形成专家共识。

中文标题:

2021 国际临床共识:神经元蜡样质脂褐质沉积症1型(CLN1)的管理

英文标题:

Management of CLN1 Disease: International Clinical Consensus

发布日期:

2021-07-20

简要介绍:

神经元蜡样质脂褐质沉积症1型(CLN1)是一种遗传性神经元变性疾病。多为常染色体隐性遗传。本文通过评估当前证据,针对CLN1的管理形成专家共识。

相关资料下载:
[AttachmentFileName(sort=1, fileName=2021 国际临床共识:神经元蜡样质脂褐质沉积症1型(CLN1)的管理.pdf)] GetToolGuiderByIdResponse(projectId=1, id=ed96a1c0021928e1, title=2021 国际临床共识:神经元蜡样质脂褐质沉积症1型(CLN1)的管理, enTitle=Management of CLN1 Disease: International Clinical Consensus, guiderFrom=Pediatric Neurology, authorId=0, author=, summary=神经元蜡样质脂褐质沉积症1型(CLN1)是一种遗传性神经元变性疾病。多为常染色体隐性遗传。本文通过评估当前证据,针对CLN1的管理形成专家共识。, cover=https://img.medsci.cn/2021924/1632491933910_5579292.jpg, journalId=0, articlesId=null, associationId=1328, associationName=国外神经外科相关专家小组(统称), associationIntro=, copyright=0, guiderPublishedTime=Tue Jul 20 00:00:00 CST 2021, originalUrl=, linkOutUrl=, content=<p><span style="color: #373737;">神经元蜡样质脂褐质沉积症1型(CLN1)是一种遗传性神经元变性疾病。多为常染色体隐性遗传。本文通过评估当前证据,针对CLN1的管理形成专家共识。</span></p>, tagList=[TagDto(tagId=115201, tagName=神经元蜡样质脂褐质沉积症1型)], categoryList=[CategoryDto(categoryId=17, categoryName=神经科, tenant=100), CategoryDto(categoryId=85, categoryName=指南&解读, tenant=100), CategoryDto(categoryId=21100, categoryName=达仁堂循证e学界, tenant=100)], articleKeywordId=0, articleKeyword=, articleKeywordNum=6, guiderKeywordId=82939, guiderKeyword=神经元蜡样脂褐质沉积症, guiderKeywordNum=6, haveAttachments=1, attachmentList=null, guiderType=0, guiderArea=共识, guiderLanguage=1, guiderRegion=2, opened=0, paymentType=, paymentAmount=10, recommend=0, recommendEndTime=null, sticky=0, stickyEndTime=null, allHits=2372, appHits=51, showAppHits=0, pcHits=368, showPcHits=2321, likes=0, shares=6, comments=3, approvalStatus=1, publishedTime=Fri Sep 24 22:03:17 CST 2021, publishedTimeString=2021-07-20, pcVisible=1, appVisible=1, editorId=5579292, editor=FUNNYMAN, waterMark=0, formatted=0, memberCards=[], isPrivilege=0, deleted=0, version=2, createdBy=null, createdName=FUNNYMAN, createdTime=Fri Sep 24 22:03:10 CST 2021, updatedBy=5579292, updatedName=FUNNYMAN, updatedTime=Thu Jan 04 07:37:40 CST 2024, courseDetails=[], otherVersionGuiders=[], isGuiderMember=false, ipAttribution=, attachmentFileNameList=[AttachmentFileName(sort=1, fileName=2021 国际临床共识:神经元蜡样质脂褐质沉积症1型(CLN1)的管理.pdf)])
2021 国际临床共识:神经元蜡样质脂褐质沉积症1型(CLN1)的管理.pdf
下载请点击:
评论区 (2)
#插入话题
  1. [GetPortalCommentsPageByObjectIdResponse(id=1232141, encodeId=a2181232141b2, content=学习, beContent=null, objectType=guider, channel=null, level=null, likeNumber=37, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=88ba5447974, createdName=ms7000001124466419, createdTime=Tue Jul 12 23:25:31 CST 2022, time=2022-07-12, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1054611, encodeId=2b2f10546118f, content=学习学习, beContent=null, objectType=guider, channel=null, level=null, likeNumber=64, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://img.medsci.cn/20210511/e9408422a23545ef9738dd674abfc4ff/c719925083844b82986bc39d43051172.jpg, createdBy=8eb14795142, createdName=与狼共舞, createdTime=Sat Sep 25 06:22:09 CST 2021, time=2021-09-25, status=1, ipAttribution=)]
    2022-07-12 ms7000001124466419

    学习

    0

  2. [GetPortalCommentsPageByObjectIdResponse(id=1232141, encodeId=a2181232141b2, content=学习, beContent=null, objectType=guider, channel=null, level=null, likeNumber=37, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=88ba5447974, createdName=ms7000001124466419, createdTime=Tue Jul 12 23:25:31 CST 2022, time=2022-07-12, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1054611, encodeId=2b2f10546118f, content=学习学习, beContent=null, objectType=guider, channel=null, level=null, likeNumber=64, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://img.medsci.cn/20210511/e9408422a23545ef9738dd674abfc4ff/c719925083844b82986bc39d43051172.jpg, createdBy=8eb14795142, createdName=与狼共舞, createdTime=Sat Sep 25 06:22:09 CST 2021, time=2021-09-25, status=1, ipAttribution=)]
    2021-09-25 与狼共舞

    学习学习

    0