ALS clinical research learning institutes (ALS-CRLI): empowering people with ALS to be research ambassadors

Bedlack, R; Pogemiller, A; Shefner, J; Cudkowicz, M; Heiman-Patterson, T

Bedlack, R (reprint author), Duke Univ, Dept Neurol, ALS Clin, Box 3333, Durham, NC 27702 USA.

AMYOTROPHIC LATERAL SCLEROSIS AND FRONTOTEMPORAL DEGENERATION, 0; ():

Abstract

Objective: Patient engagement in research is increasingly recognized as important across many countries and fields. In 2008, we conducted surveys that......

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