Registered access: authorizing data access

Dyke, SOM; Linden, M; Lappalainen, I; De Argila, JR; Carey, K; Lloyd, D; Spalding, JD; Cabili, MN; Kerry, G; Foreman, J; Cutts, T; Shabani, M; Rodriguez, LL; Haeussler, M; Walsh, B; Jiang, XQ; Wang, S; Perrett, D; Boughtwood, T; Matern, A; Brookes, A

Dyke, SOM (reprint author), McGill Univ, Fac Med, Ctr Genom & Policy, Montreal, PQ, Canada.; Dyke, SOM (reprint author), McGill Univ, Fac Med, Montreal Neurol Inst, Montreal, PQ, Canada.

EUROPEAN JOURNAL OF HUMAN GENETICS, 2018; 26 (12): 1721

Abstract

The Global Alliance for Genomics and Health (GA4GH) proposes a data access policy model-"registered access"-to increase and improve access to data req......

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