这个病人的日记值得所有人看看

2016-04-25 婉珍 医学界

导读:我是一名癌症病人,治疗结束后写了一些感想,与大家分享。 结束治疗已经一年。回想治疗期间的点点滴滴,虽仍觉伤心委屈,但庆幸自己挺过来了。这一年中每次去复查,偶尔遇见曾经的“病友”,有的精神焕发,有的萎靡颓废。在与病魔斗争的过程中,有人越战越勇,有人逐渐败下阵来。想写下一些自己的亲身经历,写下一些这一年多来的感悟,希望能传达一些正能量,也希望能给其他病人一些参考。 我14

导读:我是一名癌症病人,治疗结束后写了一些感想,与大家分享。


结束治疗已经一年。回想治疗期间的点点滴滴,虽仍觉伤心委屈,但庆幸自己挺过来了。这一年中每次去复查,偶尔遇见曾经的“病友”,有的精神焕发,有的萎靡颓废。在与病魔斗争的过程中,有人越战越勇,有人逐渐败下阵来。想写下一些自己的亲身经历,写下一些这一年多来的感悟,希望能传达一些正能量,也希望能给其他病人一些参考。

我14年被诊断出患了鼻咽癌。被确诊之后容不得我有任何考虑的时间,一下子就被带到了肿瘤病房,插上了PICC。当时脑子挺懵的,但我当时并没有自己要“完蛋了”的感觉,因为之前就已经出现了颈部淋巴结肿大的症状,辗转多家医院都没查出个因果,所以被确诊是鼻咽癌之后,我第一个也是最重要的一个心理反应是:我的病终于确诊了,终于有办法治疗了,心理压力并不是很大。

这样的一个心态给我非常大的帮助,因为我始终坚信,痛苦是暂时的,即使治疗的过程很痛苦,但总是有办法治疗的,而且一定可以治好。

正式化疗之前医生说化疗会掉头发,会恶心呕吐。可我进行完第一次化疗之后并没有掉头发,我当时心中窃喜,觉得自己真是幸运,头发都没掉呢。可这种窃喜没持续几天就被无情打破了,变成“秃子”简直就是一瞬间的事!外观的改变对人的打击很大,自信心会被迅速摧毁。我不敢照镜子,更怕别人看我,连我爸妈看我我都会觉得自卑,几乎24小时都带着帽子。所以我想告诉所有要进行放化疗的人,如果医生提前告知会掉头发,那么,一定要提前准备好一顶假发,等到头发光秃秃的时候再去买,心理压力会很大。

化疗对体力的损害真的是不知道该怎么形容,每做完一次化疗我的感觉都像是被人堵在角落里连着不停地群殴了好几天,特别的疲惫。每天觉都睡不够,而且坐不住,坐一会就想躺下,有时候连拽都拽不起来。前几次化疗我还算多多少少能吃进去一些东西,到后来真的是一口也吃不进去,而且只要一闻到饭味就恶心要吐。鼻咽癌放疗对唾液腺、味觉的伤害特别大,我咽不下东西尝不出味道,而且嗓子痛得厉害,每次吃东西都是边哭边吃。人迅速就瘦下来了。不过这都是暂时的,是可以恢复的,所以不必要过度紧张。

在肿瘤病房,经常会有各种各样的人传播着各种各样的“秘方”和特效药。各种特效药的广告单会源源不断的流入病房刺激着病人和家属敏感的神经。而且因为放化疗既痛苦又伤身,这时中医的作用就会被无限放大或者是“神化”。我周围有很多病友,在一个周期化疗结束后会立即去抓中药喝,一是说“解毒”二是说“补身”;或者是在治疗期间边化疗边喝中药,也说是“解毒”或者只是为了止吐。治疗过程中我始终没有喝过中药,不是说我不相信或是否定中医的作用,是因为我始终坚定地坚持只听我主治医生的医嘱,吃什么药不吃什么药我只听他一个人的。

在治疗的那段时间,我周围有不少病友都是“半路转来”或是“半路转走”。他们大都因为没有及时的看到疗效就否定了主治医生的能力,认为他们“没水平”、“骗人”、“庸医”,继而直接转投其他医院。也有的病人在接受治疗的同时会去其他医院找其他医生为自己“诊病”,然后根据打听到的消息对自己主治医生的治疗手段“指指点点”,甚至出现不配合的情况。这一点我想说,请一定要对自己的主治医生“从一而终”。因为从发病确诊到治疗方案的确定、治疗过程中身体各项指标的变化情况、对药物的敏感程度、治疗间隔期该注意什么等问题只有主治医生最清楚,能根据个体情况进行最合适的安排。不否定多请教人的好处,但对于肿瘤这种个体差异特别明显的病来说,对主治医生“从一而终”是一个明智的选择。

对于靶向药,我没吃过,理由挺直白的,因为吃不起。所以也没啥发言权。但我周围的病友有吃靶向药的,有的效果还特别好,人也不受罪,可就是太贵了……治疗恶性肿瘤有一点确实很让人绝望,因为它不像别的病,别的病钱花的多了少受罪,而且身体情况会越来越好,而癌症,却是“花大价钱受大罪”。钱花得再多罪一样受,而且还不保证疗效,“人财两空”的情况并不少见。所以希望病人们不要盲目的去相信“特效药”之类的,要把钱花在刀刃上,在医生的帮助下接受性价比最高的治疗方案。

治疗期间我嘴里常常都是溃疡没办法嚼,嗓子痛也不好咽。我买了一些婴儿果泥等“泥”类的婴儿食品吃,能解决一些问题。

治疗时我遇到一个姐姐,她说她把什么都放下了,甚至是自己的妈妈,她都“不在乎”、“不考虑”了,因为只有这样她才能不胡思乱想专心治病。对于这个,我不能完全赞同。治疗期间感情的支撑真的很重要,一定要把心里的想法都说出来,不要藏着掖着,也不要胡思乱想,有什么话就和家人朋友说,千万别自己憋着,也别仿佛看破了一切失了希望。允许有负面情况,允许一天哭八场,但要始终坚信自己能治好,能正常生活,这才是最重要的。

以上是我的一点点体会,愿与大家共勉。一起好好生活。

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    2016-10-03 1e10c84am36(暂无匿称)

    深度好文,值得关注

    0

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    2016-09-23 ylzr123

    好文,从这里学习了好多新知识,新信息。赞了!

    0

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    2016-09-11 doctorJiangchao

    继续学习

    0

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    2016-09-11 doctorJiangchao

    继续关注

    0

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    2016-08-26 ylzr123

    深度好文,赞一个!!!

    0

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    2016-05-05 1de4921fm57(暂无匿称)

    确定是患者吗?只能说这个患者太听话

    0

  7. [GetPortalCommentsPageByObjectIdResponse(id=139355, encodeId=4c5b139355df, content=深度好文,值得关注, beContent=null, objectType=article, channel=null, level=null, likeNumber=62, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/jW482SpianMayicTRbRZ5RzdAIB7UwTkHt6fQkBP8ictliaXtc5gCUmYdAW1sAETC2nhO3q6YjRHkUibyOCtP8ibmXNObTyd63A076/0, createdBy=d4111948983, createdName=1e10c84am36(暂无匿称), createdTime=Mon Oct 03 09:32:00 CST 2016, time=2016-10-03, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=133807, encodeId=e8fc13380e09, content=好文,从这里学习了好多新知识,新信息。赞了!, beContent=null, objectType=article, channel=null, level=null, likeNumber=55, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/NUyjXTCJjo7s7ZCKOmmbBTD6nE7gcd5OZpvyGEzkxBP3S275k5ZJVrsPkotZhBglRHM9rKvcj1OgkssqhcnoPw8zIaMZTF8c/0, createdBy=4c441942088, createdName=ylzr123, createdTime=Fri Sep 23 20:04:00 CST 2016, time=2016-09-23, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=122434, encodeId=dc4f122434fb, content=继续学习, beContent=null, objectType=article, channel=null, level=null, likeNumber=51, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/jW482SpianMayicTRbRZ5RzfPkmqRTH5rHib5mcib8Wb3QdXjhfOK1UubQL2lictjJFdFJ6Lc3cnnCOSWqxXZ4Kk6y5GdzDoy764R/0, createdBy=156e1644785, createdName=doctorJiangchao, createdTime=Sun Sep 11 11:09:00 CST 2016, time=2016-09-11, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=122435, encodeId=76b512243543, content=继续关注, beContent=null, objectType=article, channel=null, level=null, likeNumber=59, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/jW482SpianMayicTRbRZ5RzfPkmqRTH5rHib5mcib8Wb3QdXjhfOK1UubQL2lictjJFdFJ6Lc3cnnCOSWqxXZ4Kk6y5GdzDoy764R/0, createdBy=156e1644785, createdName=doctorJiangchao, createdTime=Sun Sep 11 11:09:00 CST 2016, time=2016-09-11, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=104774, encodeId=f37e104e74b6, content=深度好文,赞一个!!!, beContent=null, objectType=article, channel=null, level=null, likeNumber=63, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=https://wx.qlogo.cn/mmopen/NUyjXTCJjo7s7ZCKOmmbBTD6nE7gcd5OZpvyGEzkxBP3S275k5ZJVrsPkotZhBglRHM9rKvcj1OgkssqhcnoPw8zIaMZTF8c/0, createdBy=4c441942088, createdName=ylzr123, createdTime=Fri Aug 26 14:35:00 CST 2016, time=2016-08-26, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=84271, encodeId=1c46842e13c, content=确定是患者吗?只能说这个患者太听话, beContent=null, objectType=article, channel=null, level=null, likeNumber=85, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=http://cacheapi.medsci.cn/resource/upload/20160613/IMG575D9886B86721544.jpg, createdBy=07961686486, createdName=1de4921fm57(暂无匿称), createdTime=Thu May 05 01:29:00 CST 2016, time=2016-05-05, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=84199, encodeId=98bb84199a0, content=心态最重要!, beContent=null, objectType=article, channel=null, level=null, likeNumber=42, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=93f31631454, createdName=1dd8c52fm63(暂无匿称), createdTime=Wed May 04 14:49:00 CST 2016, time=2016-05-04, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=82982, encodeId=374b82982f3, content=坚持的力量, beContent=null, objectType=article, channel=null, level=null, likeNumber=76, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=80c71717997, createdName=WEIXIN478a4461, createdTime=Wed Apr 27 06:34:00 CST 2016, time=2016-04-27, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=82774, encodeId=0ed982e747f, content=一起好好生活,嗯心态很重要!!, beContent=null, objectType=article, channel=null, level=null, likeNumber=70, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=841a1636000, createdName=lietome1, createdTime=Tue Apr 26 08:00:00 CST 2016, time=2016-04-26, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=82762, encodeId=35bb82e624a, content=调整心态, beContent=null, objectType=article, channel=null, level=null, likeNumber=77, replyNumber=0, topicName=null, topicId=null, topicList=[], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=2d331664955, createdName=老段, createdTime=Tue Apr 26 06:38:00 CST 2016, time=2016-04-26, status=1, ipAttribution=)]
    2016-05-04 1dd8c52fm63(暂无匿称)

    心态最重要!

    0

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    2016-04-27 WEIXIN478a4461

    坚持的力量

    0

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    2016-04-26 lietome1

    一起好好生活,嗯心态很重要!!

    0

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    2016-04-26 老段

    调整心态

    0