国家罕见病质控中心落户北京协和医院

2021-03-07 北京协和医院微信公众号 北京协和医院微信公众号

为促进罕见病医疗质量提升,国家卫生健康委医政医管局委托北京协和医院筹建国家级罕见病质控中心,开展罕见病医疗质量管理与控制工作,筹建期自2020年11月至2022年12月。

为促进罕见病医疗质量提升,国家卫生健康委医政医管局委托北京协和医院筹建国家级罕见病质控中心,开展罕见病医疗质量管理与控制工作,筹建期自2020年11月至2022年12月。

2021年2月27日,在第十四个国际罕见病日来临之际,北京协和医院在线上召开了国家罕见病质控中心成立大会。

国家卫健委医政医管局监察专员郭燕红,北京协和医院院长张抒扬,国内多个省级罕见病协作网牵头医院以及成员医院的院长以及血液内科、肾内科、呼吸与危重症医学科、神经科、检验科、药剂科等多个学科近30名罕见病领域专家参加了本次会议。

郭燕红监察专员为大会录制了发言视频,对北京协和医院牵头的中国罕见病联盟带领全国专家团队在罕见病服务体系建立、诊疗培训、多学科合作以及药物可及性等领域作出的工作表示肯定。郭燕红指出,我国医疗资源分布不均,不同医疗机构间罕见病诊疗质量差别较大,患者误诊、漏诊率较高,罕见病治疗不够规范。由北京协和医院牵头建立的国家级罕见病医疗质量控制中心,将从组织管理、规范诊疗、质量控制、持续改进四个层面建立相应的组织体系及工作机制,协同各省多家医院的多学科专家团队,为我国罕见病医疗服务质量提升作出进一步贡献。

会议还邀请了北京天坛医院王拥军院长介绍了国家神经系统疾病质控中心的先进工作经验,为开展罕见病质控工作提供了宝贵思路。为了更好地将罕见病质控工作落地,北京协和医院陈丽萌教授代表国家罕见病质控中心介绍了2021年工作计划,并与各位专家进行了广泛深入讨论。

张抒扬院长大家提出的宝贵意见致以谢意,并表示北京协和医院开展罕见病质控工作有较高的工作基础,相信在各省专家的合作支持下,我国罕见病的诊断将越来越标准,治疗越来越规范,医疗质量逐步提高,从而更好地服务罕见病患者。

版权声明:
本网站所有内容来源注明为“梅斯医学”或“MedSci原创”的文字、图片和音视频资料,版权均属于梅斯医学所有。非经授权,任何媒体、网站或个人不得转载,授权转载时须注明来源为“梅斯医学”。其它来源的文章系转载文章,或“梅斯号”自媒体发布的文章,仅系出于传递更多信息之目的,本站仅负责审核内容合规,其内容不代表本站立场,本站不负责内容的准确性和版权。如果存在侵权、或不希望被转载的媒体或个人可与我们联系,我们将立即进行删除处理。
在此留言
评论区 (5)
#插入话题
  1. [GetPortalCommentsPageByObjectIdResponse(id=1763715, encodeId=76cc1e6371584, content=<a href='/topic/show?id=2796336294e' target=_blank style='color:#2F92EE;'>#北京协和#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=33629, encryptionId=2796336294e, topicName=北京协和)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=5ac337549818, createdName=1508842480_96220449, createdTime=Fri Jul 23 16:08:20 CST 2021, time=2021-07-23, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1995026, encodeId=73801995026f9, content=<a href='/topic/show?id=61b53363166' target=_blank style='color:#2F92EE;'>#北京协和医院#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=33631, encryptionId=61b53363166, topicName=北京协和医院)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=6da1120, createdName=lidong40, createdTime=Wed Jun 02 19:08:20 CST 2021, time=2021-06-02, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1389945, encodeId=fb35138994516, content=<a href='/topic/show?id=6150359e0f4' target=_blank style='color:#2F92EE;'>#协和#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=31, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=35970, encryptionId=6150359e0f4, topicName=协和)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=e2c92500045, createdName=12498636m49(暂无昵称), createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1450264, encodeId=ff9b14502641b, content=<a href='/topic/show?id=790f359e656' target=_blank style='color:#2F92EE;'>#协和医院#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=40, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=35976, encryptionId=790f359e656, topicName=协和医院)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=4aee5549395, createdName=guguangxiang, createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1467604, encodeId=9331146e60486, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=28, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=79539, encryptionId=ef32e9539e8, topicName=罕见)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=29f36868190, createdName=syscxl, createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=)]
  2. [GetPortalCommentsPageByObjectIdResponse(id=1763715, encodeId=76cc1e6371584, content=<a href='/topic/show?id=2796336294e' target=_blank style='color:#2F92EE;'>#北京协和#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=33629, encryptionId=2796336294e, topicName=北京协和)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=5ac337549818, createdName=1508842480_96220449, createdTime=Fri Jul 23 16:08:20 CST 2021, time=2021-07-23, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1995026, encodeId=73801995026f9, content=<a href='/topic/show?id=61b53363166' target=_blank style='color:#2F92EE;'>#北京协和医院#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=33631, encryptionId=61b53363166, topicName=北京协和医院)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=6da1120, createdName=lidong40, createdTime=Wed Jun 02 19:08:20 CST 2021, time=2021-06-02, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1389945, encodeId=fb35138994516, content=<a href='/topic/show?id=6150359e0f4' target=_blank style='color:#2F92EE;'>#协和#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=31, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=35970, encryptionId=6150359e0f4, topicName=协和)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=e2c92500045, createdName=12498636m49(暂无昵称), createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1450264, encodeId=ff9b14502641b, content=<a href='/topic/show?id=790f359e656' target=_blank style='color:#2F92EE;'>#协和医院#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=40, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=35976, encryptionId=790f359e656, topicName=协和医院)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=4aee5549395, createdName=guguangxiang, createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1467604, encodeId=9331146e60486, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=28, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=79539, encryptionId=ef32e9539e8, topicName=罕见)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=29f36868190, createdName=syscxl, createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=)]
  3. [GetPortalCommentsPageByObjectIdResponse(id=1763715, encodeId=76cc1e6371584, content=<a href='/topic/show?id=2796336294e' target=_blank style='color:#2F92EE;'>#北京协和#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=33629, encryptionId=2796336294e, topicName=北京协和)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=5ac337549818, createdName=1508842480_96220449, createdTime=Fri Jul 23 16:08:20 CST 2021, time=2021-07-23, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1995026, encodeId=73801995026f9, content=<a href='/topic/show?id=61b53363166' target=_blank style='color:#2F92EE;'>#北京协和医院#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=33631, encryptionId=61b53363166, topicName=北京协和医院)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=6da1120, createdName=lidong40, createdTime=Wed Jun 02 19:08:20 CST 2021, time=2021-06-02, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1389945, encodeId=fb35138994516, content=<a href='/topic/show?id=6150359e0f4' target=_blank style='color:#2F92EE;'>#协和#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=31, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=35970, encryptionId=6150359e0f4, topicName=协和)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=e2c92500045, createdName=12498636m49(暂无昵称), createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1450264, encodeId=ff9b14502641b, content=<a href='/topic/show?id=790f359e656' target=_blank style='color:#2F92EE;'>#协和医院#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=40, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=35976, encryptionId=790f359e656, topicName=协和医院)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=4aee5549395, createdName=guguangxiang, createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1467604, encodeId=9331146e60486, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=28, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=79539, encryptionId=ef32e9539e8, topicName=罕见)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=29f36868190, createdName=syscxl, createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=)]
  4. [GetPortalCommentsPageByObjectIdResponse(id=1763715, encodeId=76cc1e6371584, content=<a href='/topic/show?id=2796336294e' target=_blank style='color:#2F92EE;'>#北京协和#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=33629, encryptionId=2796336294e, topicName=北京协和)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=5ac337549818, createdName=1508842480_96220449, createdTime=Fri Jul 23 16:08:20 CST 2021, time=2021-07-23, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1995026, encodeId=73801995026f9, content=<a href='/topic/show?id=61b53363166' target=_blank style='color:#2F92EE;'>#北京协和医院#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=33631, encryptionId=61b53363166, topicName=北京协和医院)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=6da1120, createdName=lidong40, createdTime=Wed Jun 02 19:08:20 CST 2021, time=2021-06-02, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1389945, encodeId=fb35138994516, content=<a href='/topic/show?id=6150359e0f4' target=_blank style='color:#2F92EE;'>#协和#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=31, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=35970, encryptionId=6150359e0f4, topicName=协和)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=e2c92500045, createdName=12498636m49(暂无昵称), createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1450264, encodeId=ff9b14502641b, content=<a href='/topic/show?id=790f359e656' target=_blank style='color:#2F92EE;'>#协和医院#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=40, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=35976, encryptionId=790f359e656, topicName=协和医院)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=4aee5549395, createdName=guguangxiang, createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1467604, encodeId=9331146e60486, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=28, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=79539, encryptionId=ef32e9539e8, topicName=罕见)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=29f36868190, createdName=syscxl, createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=)]
  5. [GetPortalCommentsPageByObjectIdResponse(id=1763715, encodeId=76cc1e6371584, content=<a href='/topic/show?id=2796336294e' target=_blank style='color:#2F92EE;'>#北京协和#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=33629, encryptionId=2796336294e, topicName=北京协和)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=5ac337549818, createdName=1508842480_96220449, createdTime=Fri Jul 23 16:08:20 CST 2021, time=2021-07-23, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1995026, encodeId=73801995026f9, content=<a href='/topic/show?id=61b53363166' target=_blank style='color:#2F92EE;'>#北京协和医院#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=41, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=33631, encryptionId=61b53363166, topicName=北京协和医院)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=6da1120, createdName=lidong40, createdTime=Wed Jun 02 19:08:20 CST 2021, time=2021-06-02, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1389945, encodeId=fb35138994516, content=<a href='/topic/show?id=6150359e0f4' target=_blank style='color:#2F92EE;'>#协和#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=31, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=35970, encryptionId=6150359e0f4, topicName=协和)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=e2c92500045, createdName=12498636m49(暂无昵称), createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1450264, encodeId=ff9b14502641b, content=<a href='/topic/show?id=790f359e656' target=_blank style='color:#2F92EE;'>#协和医院#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=40, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=35976, encryptionId=790f359e656, topicName=协和医院)], attachment=null, authenticateStatus=null, createdAvatar=null, createdBy=4aee5549395, createdName=guguangxiang, createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=), GetPortalCommentsPageByObjectIdResponse(id=1467604, encodeId=9331146e60486, content=<a href='/topic/show?id=ef32e9539e8' target=_blank style='color:#2F92EE;'>#罕见#</a>, beContent=null, objectType=article, channel=null, level=null, likeNumber=28, replyNumber=0, topicName=null, topicId=null, topicList=[TopicDto(id=79539, encryptionId=ef32e9539e8, topicName=罕见)], attachment=null, authenticateStatus=null, createdAvatar=, createdBy=29f36868190, createdName=syscxl, createdTime=Mon Mar 08 15:08:20 CST 2021, time=2021-03-08, status=1, ipAttribution=)]
    2021-03-08 syscxl

相关资讯

事发北京协和医院!病人输不起,医生更输不起!

最近,央视报道了一则医生给患者做手术的新闻。大致经过是:在北京协和医院的妇产科门诊处,一位前来就医的女患者,让该院的主任医师谭先杰感到十分惊讶。29岁的病人小昭腹部高高隆起,肿瘤直径30厘米,掀起衣服来,像是即将分娩的双胞胎孕妇。小昭说已经看过好几家医院了,谭先杰感觉不能继续推托,最后顶着压力同意为其治疗。

北京​协和医院尹佳团队:77%的严重过敏诱因是食物

人类几乎可以对任何食物过敏。据统计,最常见的食物过敏原包括:鸡蛋、牛奶、花生、坚果、鱼类、贝类、大豆和小麦,这8种食物过敏原大约占到了总体反应数的90%。 “但目前食物过敏尚无有效的根治方法,主要治疗方法还是找到明确的致敏食物后采取避免措施。因此,医生的正确诊断尤为重要,同时要向大众普及相关知识。”8月10日在京召开的“第13届协和过敏性疾病国际高峰论坛暨第三届北京医师协会变态反应医师分会学

事发北京协和医院:医生输不起!

央视曾报道了北京协和医院的一个病例。大致经过是:在北京协和医院的妇产科门诊处,一位前来就医的女患者,让该院主任医师谭先杰感到十分惊讶。29岁的病人小昭腹部高高隆起,肿瘤直径30厘米,掀起衣服来,像是即将分娩的双胞胎孕妇。小昭说已经看过好几家医院了,谭先杰感觉不能继续推托,最后顶着压力同意为其治疗。

北京协和医院建立21羟化酶缺陷症诊治规范

  在巴黎卢浮宫内有一尊特殊的雕像,从外表看是一位面容姣美、身材窈窕的女子,但仔细观察却发现她竟拥有类似于男性的外生殖器官。这或许是雕塑家的一种独特的艺术想象和创作,但是这种疾病在现实生活中确实存在。这是一类罕见的性发育异常疾病,其中最常见的一种被称为“21羟化酶缺陷症(21OHD)”。北京协和医院内分泌科作为全国内分泌疑难疾病诊治中心,自上世纪60年代在国内率先开展21OHD的诊治,至今