Understanding caregiver experiences with disease-modifying therapies for spinal muscular atrophy: a qualitative study

Xiao, LA; Kang, SH; Djordjevic, D; Gonorazky, H; Chiang, JC; Ambreen, M; Nigro, E; Law, E; Weinstock, L; McCradden, M; Amin, R

Amin, R (通讯作者)，Hosp Sick Children, Pediat, Toronto, ON M5G 1X8, Canada.

ARCHIVES OF DISEASE IN CHILDHOOD, 2023; 108 (11): 929

Abstract

Objective Spinal muscular atrophy (SMA) is a neuromuscular disorder that manifests with motor deterioration and respiratory complications. The paradig......

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