复旦大学附属肿瘤医院创新患教形式 用漫画解抗乳癌难题

2019-03-09 陈静 /中新网

中国是乳腺癌发病大国,在所有乳腺癌患者中,约60-70%的患者雌激素受体表达阳性需接受内分泌治疗。如何向患者通俗易懂地解释乳腺癌内分泌患者在治疗和康复期间可能碰到的种种问题及其攻略?上海的医务工作者们别具心裁地用创意漫画的形式,让乳腺癌内分泌治疗患者在繁杂的信息环境,获得权威、有效、趣味的康复方法。8日,复旦大学附属肿瘤医院发布了首部《乳腺癌内分泌治疗患者手册》。粉嫩的颜色、Q萌的漫画人物,一下子

中国是乳腺癌发病大国,在所有乳腺癌患者中,约60-70%的患者雌激素受体表达阳性需接受内分泌治疗。

如何向患者通俗易懂地解释乳腺癌内分泌患者在治疗和康复期间可能碰到的种种问题及其攻略?上海的医务工作者们别具心裁地用创意漫画的形式,让乳腺癌内分泌治疗患者在繁杂的信息环境,获得权威、有效、趣味的康复方法。

8日,复旦大学附属肿瘤医院发布了首部《乳腺癌内分泌治疗患者手册》。粉嫩的颜色、Q萌的漫画人物,一下子就吸引了人们的注意力。在这本小册子里,医生、护士、女性患者的形象都十分可爱。

手册主编、复旦大学附属肿瘤医院大外科兼乳腺外科主任邵志敏教授表示:“内分泌治疗是雌激素受体阳性患者的重要治疗方法,通过降低患者体内的雌激素水平或不让雌激素发挥作用,可以有效抑制乳腺癌细胞的生长和繁殖。在一些晚期乳腺癌患者中,内分泌治疗也会起到不错疗效。”

这位专家表示,内分泌治疗作为一种有效的治疗手段,可以将地乳腺癌患者的复发转移风险,延长乳腺癌患者的生存时间。与化疗相比,内分泌治疗的不良反应轻,大多数患者可以长期耐受。

不过,尽管内分泌治疗为数以万计的乳腺癌患者带来了福音,但由于这种疗法有着漫长的治疗周期,也给患者带了一些困惑。例如,对于早期的雌激素受体阳性乳腺癌患者而言,辅助内分泌治疗的时间可能长达5-10年;如因为种种原因,患者自行停药后可能大大影响内分泌治疗效果,因而在内分泌治疗过程中“患者依从性随时间下降”也是亟待解决的难题。

邵志敏教授介绍说:“长期的内分泌治疗并不是‘每天一片药’那么简单,在这期间患者还可能碰到多种问题。”例如,药物有哪些禁忌?不良反应该如何应对?用药期间该如何随访?等等。这些看似简单的问题,但都与乳腺癌患者的有效康复密切相关,在内分泌治疗漫长的周期中会被高频次问及。这些‘小问题’的解决,对于乳腺癌患者内分泌治疗的依从性、生活质量的改善和对抗癌症的信心等方面都有积极作用。”

在上海市抗癌协会乳腺癌专业委员会发起的一项针对1000位乳腺癌患者的调研中,有63%的乳腺癌患者表达出对乳腺癌内分泌治疗不良反应管理相关知识的迫切需求。

如何让乳腺癌内分泌治疗患者在整个病程都能获得权威、易懂的资讯?为解决这一难题,由上海市抗癌协会乳腺癌专业委员会发起并撰写的《乳腺癌内分泌治疗患者手册》由此诞生。

在整合前期的调研数据后,抗癌协会的乳腺癌专家组成了编写团队,针对乳腺癌内分泌患者们提出的多种问题给出通俗易懂的解答,并通过创意漫画的形式呈现出来。专委会还通过志愿者及患者会现场活动的形式收集患者对手册编撰的意见,进行补充调整。

最终,在这本手册中,患者常见的问题,变成了漫画人物的趣味交流;一些专业术语,也变成了通俗易懂的对白和形象的图画。

“这本通俗接地气的科普手册进一步完善了乳腺癌全程管理的康复环节”,邵志敏教授表示,“如今,乳腺癌越来越像一种慢性病,雌激素受体阳性的乳腺癌尤为如此,通过长期的疾病管理和控制,患者有望获得良好的预后和生存。在此期间,我们希望这些便捷、趣味化的内容能够帮助患者获得权威的答案,实实在在解决抗癌历程遇到的问题。”

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    2019-04-02 xuanzixue02

    哪里可以得到这个漫画手册

    0

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    2019-03-15 衣带渐宽

    学习

    0

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    2019-03-11 saikp

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